| |
The Committee of Ministers, pursuant to Article 15 (b) of the
Statute of the Council of Europe, Considering that the aim of
the Council of Europe is to achieve a greater unity between
its members for the purpose of facilitating their economic and
social progress;
Considering that this aim can be pursued, inter alia, by the
adoption of common rules in the field of rehabilitation;
Considering that there are in the world more than 500
million people with disabilities as a consequence of
physical, mental or sensory deficiencies;
Recognising that the rehabilitation of people
with disabilities, by virtue of the economic and social integration
it achieves, is a duty of the community, which guarantees human
dignity and alleviates the difficulties stemming from society,
with which people with disabilities are confronted, and that
it should be included among the priority objectives
of any social policy;
Considering that failure to protect the rights of citizens with
disabilities and improve their opportunities is a violation
of human dignity and entails a heavy financial burden, an attitude
that results in:
- many people becoming unnecessarily dependent on others and
incapable of any economically and socially productive activity;
- the remedies to such dependency often seeming only financial,
whereas payments intended to compensate for incapacity are but
one aspect of any policy in favour of people with disabilities;
Having regard to the fact that in member States the legislature
as well as private and public initiative, particularly through
the action of non-governmental organisations, have agreed to
intensify their efforts to promote the social integration of
people with disabilities;
Bearing in mind the principles embodied in Article 15
of the European Social Charter, viz the right of people with
physical or mental disabilities to vocational training, rehabilitation
and social resettlement;
Bearing in mind Recommendation R(86)18 on the "European
Charter on Sport for all: disabled persons";
Considering it important that the comprehensive and continuous
process of rehabilitation should be initiated very early and
carried out by qualified personnel within a coherent and co-ordinated
system;
Having regard to Resolution AP(84)3 on a coherent policy for
the rehabilitation of disabled people, adopted in the framework
of the Partial Agreement in the Social and Public Health Field;
Having regard to the final declaration of the ad hoc Conference
of Ministers responsible for Policies on People with Disabilities
(Paris, 7 and 8 November 1991), inviting the Committee of Ministers
to adopt the draft Recommendation which updates Resolution AP(84)3
and adapts it to progress made in the meantime, Recommends that
the governments of the member States:
- follow the principles and measures advocated in the Appendix
to this Recommendation when drawing up their rehabilitation
programmes;
- ensure a wide distribution of this Recommendation among public
and private circles concerned with the rehabilitation of people
with disabilities;
- provide a periodic stock-taking in the form of an update of
the report on legislation concerning the rehabilitation of people
with disabilities, including illustrations of concrete results
achieved;
Resolves that this Recommendation shall replace Resolution AP(84)3.
Appendix to Recommendation No. R(92)6
I. GENERAL POLICY
1. Principles
A coherent and global policy in favour of people with disabilities
or who are in danger of acquiring them should aim at:
- preventing or eliminating disablement, preventing its deterioration
and alleviating its consequences;
- guaranteeing full and active participation in community life;
- helping them to lead independent lives, according to their
own wishes.
It is an ongoing and dynamic process of mutual adaptation, involving
on the one hand people with disabilities living according to
their own wishes, choice and abilities, which must be developed
as far as possible, and on the other hand, society which must
demonstrate its support by taking specific and appropriate steps
to ensure equality of opportunity.
2. Aims
All people who are disabled or are in danger of becoming so,
regardless of their age and race, and of the nature, origin,
degree or severity of their disablement, should have a right
to the individual assistance required in order to lead a life
as far as possible commensurate with their ability and potential.
Through a co-ordinated set of measures they should be enabled
to:
- be as free as possible from avoidable impairments and disabilities;
- be as free as possible from needing permanent medical treatment
and care, while having access to such care whenever necessary;
- retain as much personal responsibility as possible in the
planning and implementation of rehabilitation and integration
processes;
- exercise their rights to full citizenship and have access
to all institutions and services of the community including
education;
- be as free as possible from institutional settings and constraints,
or where these are unavoidable, to have as much personal choice
as possible within the said institution;
- have as much economic independence as possible, particularly
by having an occupation as highly qualified as possible and
a commensurate personal income;
- have a minimum livelihood, if appropriate by means of social
benefits;
- have as much mobility as possible, and access to buildings
and means of transport;
- be provided with the necessary personal care, in a location
of their choice;
- have as much personal self-determination and independence
as possible, including independence from their own families,
if they so desire;
- to play a full role in society and take part in economic,
social, leisure, recreational and cultural activities.
The special situation faced by women
and elderly people with a disability should receive particular
attention.
3. Fields of intervention
States must therefore pursue a coherent, global and comprehensive
policy in co-operation with people with disabilities and the
organisations of and for them, to secure all necessary help
for people with disabilities. This policy concerns all areas
of community life and is particularly directed towards:
- prevention and health education,
- identification and diagnosis,
- treatment and therapeutic aids,
- education,
- vocational guidance and training,
- employment,
- social integration and daily environment,
- social, economic and legal protection,
- training of persons involved in the rehabilitation process
and in the social integration of people with disabilities,
- information, statistics and research.
4. General directives
To implement this policy states should take
the following steps:
- guarantee the right of people with disabilities to an independent
life and full integration into society, and recognise society's
duty to make this possible,
- recognise the need for early intervention,
- prevent the onset and aggravation of impairment, disability
or handicap, eliminate or reduce their effects and prevent
the occurrence of additional handicaps such as emotional and
psychological disorders,
- draw up in collaboration with the person with a disability
and his family a rehabilitation programme involving a wide-ranging,
continuing and personalised set of services, beginning as
soon as an impairment becomes apparent, passing through successive
stages to integration in working and community life and avoiding
also the necessity for permanent institutional care,
- secure access to these programmes for all people with disabilities
who need them,
- make optimal use of rehabilitation methods whenever possible,
in establishments provided for the general public, and if
the need arises, in specialised facilities and services,
- remove wherever possible all obstacles in the environment
and in society and make it possible for people with disabilities
to play a full role,
- ensure that people with disabilities have access to general
or specialised education, according to their needs,
- ensure that people with disabilities enjoy a respectable
standard of life, if necessary by means of economic benefits
and social services,
- ensure access to leisure and cultural activities,
- involve the general public, professionals, social partners
and the families of people with disabilities in their efforts,
- promote research on disability prevention, rehabilitation,
and in other fields concerning people with disabilities,
- make sure that there is early and close co-operation between
health, education, vocational training, employment, social
welfare and all other relevant agencies and authorities and
establish links and co-ordinating procedures between bodies,
departments, regional and local authorities, families and
voluntary organisations concerned with the integration of
people with disabilities,
- improve the information of policy makers whose decisions
concerning the physical and social environment affect the
quality of life of people with disabilities,
- encourage a wider distribution of information about the
rights of people with disabilities and the services available
to them,
- ensure that people with disabilities and their organisations
play a full and active role in the promotion of these people's
interests,
- set up a continuous evaluation process of measures taken
on rehabilitation.
Moreover, integration of people with disabilities is a task
not only for the state but for society as a whole and for
all its members, representatives and institutions. Consideration
for people with disabilities must not only be the responsibility
of the family, friends and neighbours but of all members of
society who must be mindful of all types of intolerance and
who must realise that they too have a duty to enable people
with disabilities to participate in life "as normally
as possible."
The more it is accepted that people with disabilities must
be integrated into the general and normal activities of life,
the better external assistance - usually provided by the public
authorities - can be concentrated on areas in which "automatic"
participation by people with disabilities is not yet possible.
Social security benefits and other assistance cannot replace,
but only facilitate and further the integration into society
of people who are, or who may become disabled. Where, as a
result of commitments by individuals and society, integration
is achieved directly, the volume of "necessary assistance"
is also reduced. However, it is important to ensure that sufficient
financial resources are available in order to overcome the
disadvantages affecting people with disabilities.
Social provisions remain however in many spheres an essential
means of either activating and supporting self-help or initiating
and promoting rehabilitation and integration processes. In
addition, the more integration and independent living of people
with disabilities in the community is a success, the more
urgent is the need for:
- national, regional, local and individual co-ordination of
all relevant activities by suitable structures with specific
competences, and
- information for people with disabilities, their families
and all the institutions involved in their integration, including
advice on how best to take advantage of the facilities and
assistance available in each case.
5. Definitions
5.1 The concepts underlying this policy are those defined
by the World Health Organisation, namely :
- an IMPAIRMENT is any loss or abnormality of psychological,
physiological or anatomical structure or functions;
- a DISABILITY is any restriction or lack (resulting from
an impairment) of ability to perform an activity in the manner
of or within the range considered normal for a human being
;
- a HANDICAP is a disadvantage, for a given individual, resulting
from an impairment or a disability, that limits or prevents
the fulfilment of a role that is normal (depending on age,
sex and social and cultural factors) for that individual.
5.2 It follows from this that the handicap depends on the
person's relation with his environment. A handicap is evident
when such people encounter cultural, material or social obstacles,
denying them access to the whole range of services and opportunities
available to their fellow citizens. Thus the handicap involves
the loss or limitation of scope to participate in community
life on an equal footing with others .
5.3 People with disabilities do not form a uniform group of
people all needing the same assistance. Definitions and classifications
must therefore not have the effect of separating people with
disabilities from society or excluding them from the possible
steps of rehabilitation and integration, but point to their
individual problems and prospects and to ways in which all
people with disabilities can gain access to the assistance
they need to enable them to fully participate in society.
II. PREVENTION AND HEALTH EDUCATION
1. Aims
Preventive action should be taken as early as possible in
the individual, medical, occupational and social spheres as
well as in the improvement of the surroundings:
- to prevent an impairment from arising or worsening,
- to reduce as far as possible the degree
of disability for a given impairment,
- to reduce any social disadvantage arising
from a given disability.
2. Prevention of impairment
2.1 To act against direct or indirect causes of impairments,
strategies should be devised for appropriate action for the
prevention of accidents (occurring, for instance, in the home,
on the roads, on the sports field, at school and at work)
and diseases (including occupational diseases, diseases associated
with leisure activities, diseases common with elderly people,
etc). This action should comprise monitoring at various stages
during the period of growth, regular check-ups for workers
at risk, immunisation, and monitoring of degenerative diseases.
2.2 The health services should be capable of providing early
diagnosis and treatment of impairments. In this context, the
important role played by emergency medicine in the rapid and
effective treatment of all health problems caused by accidents
and for other reasons should be recognised and adequate financing
resources, staff and training should be made available.
2.3 To prevent congenital impairments, services should
be set up to provide genetic screening, pre-marital screening
and diagnosis, monitoring of high-risk and normal pregnancies
and confinements, care for high-risk new-born babies and early
detection and diagnosis of diseases as well as mental, motor
and sensory disorders.
2.4 The prevention of congenital impairments must always
be in accordance with ethical principles. In particular,
pre-natal genetic screening and diagnosis require that couples
and pregnant women be fully informed and advised about the
possibilities of and the reasons for their use, as well as
about the risks they involve. Appropriate genetic counselling
must provide pregnant women with full information, on the
basis of which they may freely take their decision regarding
these tests and must always accompany the pre-natal screening
and diagnosis but not involve any compulsion.
3. Prevention of disability
In addition to the measures to detect, treat and diagnose
impairments at an early stage, steps should be taken to ensure
individualised and community programmes of rehabilitation,
including follow-up and evaluation, as well as the necessary
support to individuals and their families . These programmes
should take account, inter alia, of each individual's specific
situation and problems, with the help of functional diagnosis,
in order to prevent any secondary (emotional, cognitive, mental,
motor or social) effects of the impairment with the help of
early educational measures targeted at the individual and
the creation of awareness in the family and the sector of
society concerned.
4. Prevention of handicap
Along with the steps recommended to prevent impairment and/or
disability, individualised programmes of psycho-social rehabilitation
aiming at the full development of the person should be set
up. In addition, all necessary and adequate (also binding)
measures should be used, as well as adequate measures to provide
information, so as to promote the full integration of people
with disabilities into society, inter alia, by means of
early integration at school, provision of adapted educational
services, integration into ordinary working life, etc, to
enable them to live an independent life.
5. Health education
5.1 Health education should aim at helping people to develop
the ability to take reasonable decisions regarding their own
health and comprise all information and educational activities
to encourage them:
- to lead a healthy life,
- to learn what to do - both individually and collectively
- to remain in good health, and
- to avail themselves of assistance in case of need.
Within the framework
of a coherent policy for people with disabilities, health
education of individuals, the community, society and those
members of society responsible for decision-making and management
is an effective and indispensable preventive instrument.
5.2 Educational action intended to prevent impairment
should be aimed at the whole population, and primarily
at young people of school age, i.e. at a time when children
from all backgrounds are still particularly open and amenable
to the reception of simple but effective messages concerning
health education.
Action in regard to specific problems should be aimed at certain
specific groups such as women of child-bearing age, couples,
drivers and the elderly.
Consequently, the information which has to be given should
relate to factors and circumstances which may give rise to
impairment, such as:
- factors which stimulate congenital malformation (chemical,
radioactive, biological and pharmacological agents, infection
organisms),
- adverse effects on the foetus as well as cerebral lesions,
- growth deficiencies,
- certain pathological conditions,
- risks associated with lifestyles, for instance smoking,
drinking,
- the process of ageing and
- circumstances which are the cause of accidents or which
can lead to accidents.
5.3 Where there is an impairment, health education may be
useful to prevent or limit a disability. The educational action
should be aimed at the people suffering from the impairment,
their families and all those - the general public as well
as professional staff - who may be concerned.
The information to be provided should concern the situations
and types of behaviour which give rise to disability, the
measures which may be taken, use of the health services and
the lifestyle of the individuals and their families. Elderly
ill people should be made aware that in many cases:
- their condition is not irreversible if modern medical and
psychological measures are applied and
- the combination of therapeutical measures and personal determination
can change their situation.
5.4 Health education directed to prevent impairments or disabilities
from becoming handicaps extends to the whole of society and
may promote the concepts of integration and rehabilitation,
of equality of opportunity and of participation for people
with disabilities.
Educational action should aim at:
- informing people with disabilities, their families and the
general public how and why disability can lead to handicap,
and how handicaps may be prevented or limited,
- meeting individuals' needs for independence and personal
development in everyday life, work, schooling and recreation,
- contributing to the creation of individual and collective
attitudes which can make life easier for people with disabilities,
and should make it possible to start a dialogue and foster
solidarity between people with disabilities and the able-bodied.
III. IDENTIFICATION AND DIAGNOSIS
1. Identification of impairments
1.1 In depth studies are important to identify the nature
and prevalence of conditions such as:
- certain impairments, in order to conduct research into their
origins and eliminate their potential causes;
- certain congenital or acquired disorders, in order to
attenuate their effects as early as possible through medical
treatment or surgery, prostheses and ortheses or rehabilitation
programmes in a continuous process of treatment adapted to
individuals' needs;
- impairments due to advancing age, in order to prevent their
onset or deterioration and enable elderly people to maintain
their independence as long as possible in satisfactory economic
and psychological conditions.
1.2 This study will rely heavily on periodical medical
examinations, before and after birth, in infancy, at school,
before marriage, before and during employment and at other
stages of life, in full respect of medical confidentiality
and of the right to privacy.
2. Diagnosis
A diagnosis of the impairment should be made as soon as possible,
and be based on an accurate personal and family medical history,
laboratory tests and a functional assessment of the exact
nature and degree of the impairment. Measures should be taken
to protect this data.
It would be appropriate to entrust responsibility for diagnosis
to the existing preventive medical services and/or the medical
and welfare services responsible for screening.
These services should also be responsible for collecting data
on the cases examined, these being useful for devising preventive
measures, and for ensuring confidentiality.
IV. TREATMENT AND THERAPEUTIC AIDS
1. Medical treatment
1.1 In order to prevent, eliminate or reduce the effects of
impairments or disabilities, to prevent deterioration or to
alleviate their consequences at an early stage, it is necessary
to implement an operational health programme of:
- competent therapeutic, especially surgical, medical, psychological
and dietetic treatment, within a broad multi-disciplinary
and co-ordinated network,
- constant monitoring of the impairment in full respect of
the freedom of the individual, and
- identification of the most suitable modern facilities for
carrying out the programme adapted to the nature and seriousness
of the impairment and disability concerned.
1.2 Early therapeutic action should be taken to limit the
effects of the impairment as far as possible in order to ensure
that :
- physical and other functional abilities will be regained
and continue their natural development, and
- the need for constant nursing is avoided or reduced, especially
in the case of elderly people.
1.3 People who are disabled or likely to become so and their
families must be fully informed and involved, where possible,
in the choice of treatment for their impairment and the choice
of means of living an independent life.
2. Medical assistance, medical and functional rehabilitation
2.1 Health policy should cover all forms of medical and pharmaceutical
assistance, including medical and functional rehabilitation.
2.2 Medical assistance services should include general medical
and nursing assistance at home and on an out-patient basis,
specialised medical and nursing assistance for physical and
mental illnesses and hospital care. To ensure that people
with disabilities have the benefit of comprehensive, extensive
medical and psychological assistance services, special forms
of assistance, as an out-patient or at home, should be available
in preference to care in hospital, when the disability so
permits, so as to improve the patients' quality of life and
enable them to remain surrounded by their family and in contact
with their friends.
Moreover, appropriate measures should be taken to provide
social security cover for irreducible chronic pain, whenever
necessary.
2.3 To ensure that people with specific types of impairment
can be rehabilitated to the greatest possible extent, it is
necessary to make provision for suitable treatment and, where
necessary, to take advantage of the experience of specialists
and hospitals in other countries.
2.4 Sickness insurance schemes should make provision, in the
case of people with disabilities, not only for medicines normally
used to treat acute illness and dangerous and chronic diseases
but also for products which are primarily preventive.
2.5 Medical rehabilitation should comprise a combination
of forms of treatment and specialised rehabilitation systems
designed to lessen the consequences of the injury, disease
or infirmity and restore the physical and mental functions.
Whatever the nature and degree of the impairment, the medical
treatment involves psychological and educational support to
adapt to the disability. The ultimate, essential aim is
to assist people with disabilities to become as independent
as possible.
2.6 Functional rehabilitation as an interdisciplinary combination
of techniques for improving the functional prognosis and the
prognosis for disabling localised or general pathological
effects should include:
- motor rehabilitation, in which physiotherapy is used to
enable the person to recover the use of the affected muscles
and strengthen those that are intact, and
- occupational therapy, in which the restored motor capacity
is exploited and consideration is given to the possibility
of using aids to enable the person with disabilities to learn
or recover, as far as possible, all the functional activities
needed to go back to work or find a job,
- rehabilitation of the capabilities needed to live an independent
life in the community,
- rehabilitation to avoid or to reduce the need for continuous
care.
- speech therapy, in which a person is given the opportunity
to restore and develop communications skills.
2.7 Rehabilitation of children should take place early
enough so that they fully develop their natural abilities
and, in addition to functional rehabilitation, benefit from
education, preferably in normal schools in the company of
other children of the same age. As far as possible, preference
should be given to out-patient treatment. If, however, hospitalisation
or special institutional care is essential, strong, active
links should be maintained with the school so that the children
continue to mix with their peers. In addition, provision
should be made for the aid needed to enable parents to maintain
frequent contact with their children.
The child may often require both mainstream education and
specialised care. These should be combined to facilitate transition
and integration into normal school life.
2.8 For adults, including elderly people, measures should
be taken to avoid hospitalisation or shorten hospital stays
by:
- ensuring that sufficient specialised centres and clinics
provide out-patient treatment;
- providing transport to and from such establishments in order
to enable people to benefit from the treatment available;
- arranging home treatment where hospital visits prove difficult
or impossible.
2.9 To enable the integration of people with disabilities
into working life and society, services should as far as possible
be provided at home or in out-patient clinics, and facilities
should be set up accordingly. Where institutional care is
unavoidable, arrangements should be made for the patient to
return home at regular intervals. Developing facilities for
moving about and modes of transport adapted to the specific
circumstances and disabilities of the people concerned and
their availability in sufficient numbers, is one way of introducing
and promoting this approach to rehabilitation.
2.10 Prolonged stay in hospital can be avoided by appropriate
action on the part of the institutions themselves and by public
or voluntary agencies to prepare and facilitate discharge
from hospital, especially by establishing contact:
- with the family to ensure that it continues to take an interest
in the person with a disability;
- with the employer when work can be resumed;
- with the landlord to avoid loss of accommodation;
- if need be, with a service which can make accommodation
accessible;
- with those who provide social assistance services, upon
hospital discharge, to facilitate the transition process.
It is also necessary to protect the patient's property during
his stay in hospital and make sure that he retains his accommodation.
2.11 After discharge from hospital, all necessary measures
should be available:
- to assist the family to take (or take back) the person with
a disability to live with them on discharge from hospital;
- securing resettlement at work for the adult with a disability
as soon as possible;
- securing resettlement in society for the person with a disability
concurrent with the continuation of treatment, thus facilitating
the transition process.
2.12 Rehabilitation centres should be as fully equipped
as possible for the treatment they provide and have a multi-disciplinary
team of staff specialising in rehabilitation. They should
be able to enter into agreements with specialised hospitals
so that they can take advantage of specialised forms of care
and treatment. They should also have facilities for:
- initial training or renewed training in exertion;
- vocational counselling;
- occupational therapy and, for adults, prevocational occupational
therapy;
- psychological or psychiatric help to enable people to adapt
to their limitations in order to overcome their disability.
- speech therapy, physical therapy, etc. for specific disabilities.
2.13 The general activities of rehabilitation
centres should be complemented by facilities (swimming pools,
halls for entertainment, film shows, plays, etc) for organising
recreational activities that allow integration with the outside
world.
2.14 Employers, employers' organisations, occupational accident
insurance agencies and similar bodies should be encouraged,
to the extent required by national conditions, to set up medical
and physical rehabilitation centres or assist in setting up
rehabilitation centres providing mostly medical treatment,
occupational therapy and similar services to help employees
to regain working fitness.
3. Prostheses, orthoses and technical aids
3.1 The medical rehabilitation programme should also include
full provision for the choice, use and supply of appropriate:
- prostheses (appliances which wholly or partly replace the
missing parts of the body, restoring, as far as possible,
the impaired function),
- orthoses (therapeutic appliances which not only passively
support particular joints but also facilitate, improve and
control the functional performance of the impaired parts of
the body) and
- technical aids (appliances designed to compensate for those
functions which, for various reasons, can no longer be performed
or are performed in an abnormal way because of physical or
sensory damage, including low vision aids, adapted telephones,
translators etc.)
3.2 The appliance should be supplied quickly in accordance
with the medical prescription and adjusted, maintained and
replaced when necessary because the provision of appropriate
aids allows many children with disabilities to attend an ordinary
school, assists occupational resettlement and helps towards
the social integration of people with disabilities.
3.3 Fitting an appliance should be done by a specialised medical
rehabilitation institution or, at its instigation and with
its co-operation, on the prescription of a medical specialist.
The specialist, either alone or in consultation with the specialised
institution's rehabilitation team, should - in co-operation
with the person with a disability - decide on the type of
appliance and the model best suited to the patient, ascertain
the latter's ability to adapt to it and specify what special
devices are needed in each particular case.
3.4 Technical and administrative measures should be taken
to co-ordinate, for the benefit of all people concerned, the
principles of modern appliance-fitting, objective information
and uniform decision-making on technical matters and prices.
3.5 Training in the use of appliances, including regular follow-up
procedures, must be available for people with disabilities.
4. Assessment of abilities
4.1 To obtain the best possible rehabilitation programme and
a prognosis for educational, vocational and social integration,
a regular assessment of abilities should be performed, and
people with disabilities and their family should be enabled
to explore and assess their abilities. This evaluation, to
be done with the collaboration of the people with disabilities
should be carried out at all stages of rehabilitation as well
as when they take up employment.
4.2 The medical assessment of abilities and how they might
be improved should be made by doctors specialising in rehabilitation,
by other specialists with expertise in rehabilitation according
to their speciality, or by doctors with special knowledge
of particular disabilities, with the direct participation
of the people with disabilities and their family.
V. EDUCATION
1. Aims
1.1 All people with disabilities, regardless of the nature
or degree of their disability, have the right to appropriate
free education adapted to meet their needs and wishes.
1.2 Education should enable people with disabilities to:
- achieve the highest possible level of personal development,
- be stimulated to learn, taking account of their disabilities
and using aids to facilitate learning,
- accept their disabilities and acquire the skills necessary
to overcome the obstacles they face.
1.3 Education should help people with disabilities to achieve
economic independence as far as possible and contribute to
their country's social development. Apart from teaching academic
skills, education of young people with disabilities should
include:
- social skills and preparation for an independent life in
co-operation with parents and educational staff, and
- practical assistance to enable them to cope with life and
to integrate into society.
1.4 The objectives and the means put into operation to educate
the child with a disability form part of an individual pedagogic,
educational and global therapeutic project which is adapted
to the child's needs, abilities and wishes. The responsible
professionals should associate the child's family as much
as possible and in an active way with the drawing up of this
project, its implementation, its follow-up and its assessment.
The family should consequently be regularly kept informed
of the child's evolution and should be given as much support
as it needs.
1.5 Taking into account the principles of early intervention,
it is in the child's interest:
- to begin medico-educational measures at pre-school age,
especially where they are intended to make it easier for the
child to obtain a school education at a later stage, and
- to attend school or pre-school classes from a very early
age.
1.6 Contacts between children with and without disabilities
provide a powerful stimulus for the integration of both.
Therefore education should be provided in an ordinary environment
together with their peer groups wherever possible and whenever
the necessary assistance, support and fostering for young
people with disabilities can be given there; to meet their
specific needs, the supply of children with disabilities with
special therapeutic, technical and educational aids should
be ensured in every case. Whether the child's individual
situation requires specialised education, mainstream education,
or some combination thereof, a "continuum of provision"
is essential and involves:
- close co-operation between special and mainstream schools,
- contact between children with and without disabilities of
the same age,
- encouragement of transition to mainstream schools where
possible and desired.
Innovative approaches to help individuals should be encouraged.
1.7 Nursery schools or, in some cases, early pedagogic
guidance services, are a favourable starting point for educating
children with and without disabilities together, since they
are able to use flexible means of encouraging individuals;
the children learn to socialise with each other, and the principle
in subsequent education of standardising performance does
not apply.
1.8 The nature and type of schools should be chosen by
means of a careful assessment process, in which parents and
children with disabilities are assisted by a multidisciplinary
team of specialists using pupil guidance techniques and focussing
on the child's particular abilities, wishes and needs.
1.9 Special attention should be given to the role and impact
of new technology on teaching planning processes. Ways
should be investigated in which computers can be used to
support children with disabilities in education.
1.10 Since contacts between the school and the child's
family are essential, the family's interest and participation
in the work of the school should be encouraged. It should
be noted that the child's transition from one educational
environment to another calls for a great deal of adaptability
on the part of both the child and his parents, who may all
need psychological support.
1.11 All children with disabilities, whatever the nature of
their disability, are entitled to an appropriate education
in an appropriate environment according to their needs and
the wishes of their family.
1.12 All people with disabilities who can benefit from it
should be given the opportunity of continuing their education.
2. Mainstream education
2.1 To enable the largest possible number of children to attend
a mainstream school, the following requirements must be satisfied:
- medico-therapeutic and psychological services,
- adapted class size in which the main teacher should
be assisted, if necessary, by other adequately qualified staff,
- premises and equipment suitable for children with disabilities
including measures for improved accessibility and transport,
- specially adapted teaching methods and materials, curricula
and examination regulations, and
- counselling, implementation and action concepts which take
account of the kind of disability concerned.
2.2 Because:
- trying to educate children with disabilities alongside able-bodied
children without supplying the necessary support systems diminishes
their chances of equality and
- it depends on the circumstances in each case and especially
on the specific disability whether children with disabilities
make better progress in a special or in a mainstream school,
the wishes and aims of parents and the extent to which educational
and therapeutic facilities are provided near their homes should
be carefully considered.
3. Special education
3.1 Children too seriously disabled to attend an ordinary
nursery school should receive special tuition at an early
age, either at home or at a special centre, e.g. a special
nursery school.
3.2 A sufficient number of special schools and vocational
training schools should be:
- set up,
- equipped with the necessary collective and individual technical
support,
- staffed by teachers with adequate special teaching qualifications,
- installed as resource centres for mainstream schools and,
- linked with mainstream schools to increase co-operation.
3.3 Where residential care for children is essential, it should
be provided in a family atmosphere. To avoid prolonged absence
of the child it may be desirable to place children in foster
families. Frequent contacts between the children with disabilities
and their parents should be encouraged.
3.4 Special teaching should continue for as long as the person
with a disability profits by it.
4. Education and rehabilitation
4.1 During education, pupils with disabilities should have
access to programmes and resources enabling them to prepare
for future employment, such as vocational guidance and other
support systems.
4.2 Links should be established during schooling between
education, occupational training and future employment by
arranging for appropriate ordinary or specialised vocational
guidance assessments.
4.3 While at school, children must have access to the various
medical or functional rehabilitation resources.
4.4 Young people with disabilities and especially those
who have learning difficulties, should receive special educational
support during their course.
4.5 Educational establishments should be easily accessible
and structurally adapted to the needs of children with disabilities.
5. Education of adults with disabilities
5.1 Particular attention should be paid to the role of adult
education, especially in so far as people with mental disabilities
are concerned. Adult education should provide the maximum
range of opportunities for people with disabilities, including
training in basic skills and specialised education.
5.2 The particular needs of elderly people with disabilities
should be taken into account, since they vary from those of
other adults with disabilities. The elderly can benefit significantly
from education in access, self-management, living skills,
etc, as well as from participation in mainstream adult educational
programmes.
VI. VOCATIONAL GUIDANCE AND TRAINING
1. Assessment of vocational aptitudes
Persons with disabilities should have access to the assessment
of their capacities which:
- are necessary to explore their possibilities of achievement;
- help identify their options regarding potential occupations;
- provide the basis for their programme of rehabilitation
and integration;
- may help them to find appropriate employment or re-employment.
Vocational guidance should include an analysis of the medical,
psychological, educational, occupational and social situation
of the people with disabilities and their probable evolution.
It should be made by specialists who understand people with
disabilities and what they can achieve, on the one hand, and
the requirements of working life on the other, with a view
to providing the most adequate prognosis, and in co-operation
with these people.
2. Guidance
2.1 Vocational guidance should determine the occupations most
suited for people with disabilities, and enable them to choose
an occupation according to their knowledge and abilities.
It must take into account the personal wishes of the individuals
concerned and be based on the most thorough possible assessment
of their occupational aptitudes.
2.2 Such guidance equally concerns people who have been in
employment as those who do not yet have any experience of
work or those who are temporarily unable to work. The previous
occupation of the person with a disability, the special requirements
of the occupation concerned and the possibilities of the labour
market must be taken into consideration.
2.3 Vocational guidance should be provided as early as possible,
in other words as soon as the person's situation makes it
possible to envisage his entry into or return to working life.
In the case of young people with disabilities, it should be
provided for pupils in all types of educational environment.
2.4 People with disabilities should have easy access to mainstream
employment advisory services, but special vocational guidance
may be desirable because:
- equipment adapted to impairments must be available;
- the staff must be trained in special assessment
techniques and know about impairments and their development.
2.5 Special vocational guidance centres or special facilities
in general centres should consequently be made responsible
for advising people with disabilities on suitable occupations
or on training that will enable them to secure employment.
These centres or facilities should be organised in the form
of networks and ensure close co-ordination with the institutions
and services responsible for rehabilitation.
2.6 With certain impairments requiring special treatment and
medical follow-up, the special centre or service should intervene
in the course of medical rehabilitation after a sufficient
period of observation and, at the latest, after stabilisation
of the treatment under continuous medical supervision.
2.7 The decision whether to carry out special assessments
and, if so, the choice of methods, depends on a person's age,
educational attainments and occupational status. In all cases
strict and well-tried methods should be combined with research
and innovative techniques so as to ensure that all the aptitudes
and potentialities of the people concerned are taken into
account.
2.8 Guidance services or centres should be provided with sufficiently
qualified staff working in multidisciplinary teams. The team
should include a guidance officer, a doctor and a social worker.
Depending on its degree of specialisation and the purpose
of the centre or service, it could be supplemented by other
specialists such as a psychologist, a physiotherapist or a
technical instructor.
2.9 The person with a disability and, if necessary, his family
or representative should have active involvement in all the
guidance measures taken.
2.10 The person with a disability should not be discriminated
against in terms of access to vocational guidance and training
on the basis of age, sex, race, origin, religion etc.
3. Vocational training
3.1 The aim of vocational training and rehabilitation should
be to help people with disabilities to obtain or retain employment,
to advance in their career and thereby to facilitate their
integration or reintegration into society. The vocational
integration programme should endeavour to set out and develop
the concepts of ILO Convention 159 and Recommendation 168
on vocational training and rehabilitation in order to further
the integration of people with disabilities.
3.2 Vocational training and rehabilitation should:
- be open to all categories of people with disabilities,
- cover all types of activities in order to increase the range
of vocational choice for the people concerned, and
- as far as possible be adapted to developments in the employment
market.
3.3 Vocational rehabilitation should be initiated as soon
as possible. To this end, medical and social rehabilitation
services should co-operate on a regular basis with the bodies
responsible for vocational rehabilitation.
3.4 Whenever the disability of the person concerned is not
a major obstacle, the ordinary training system should be used.
However, the ordinary system may need to be modified and should
provide adequate facilities for the vast range of individual
disabilities and differences.
3.5 Special vocational training and rehabilitation courses
in special schools, medico-educational institutions or vocational
training and rehabilitation centres may be required on account
of the kind or severity of the disability or in order to guarantee
the success of the rehabilitation process. Training within
places of employment should be encouraged. Specialised training
may be envisaged when it facilitates integration into the
normal working environment.
3.6 Vocational training and rehabilitation should, if necessary,
be accompanied by medical surveillance of the person with
a disability, possibly in collaboration with the functional
or medical rehabilitation services.
3.7 Reports should be made periodically on the development
of each training or rehabilitation programme, in collaboration
with the vocational guidance centre.
VII. EMPLOYMENT
1. Principles
1.1 To permit the fullest possible vocational integration
of people with disabilities, whatever the origin, nature,
and degree of their disability, and thereby also to promote
their social integration and personal fulfillment, all individual
and collective measures should be taken to enable them to
work, whenever possible in an ordinary working environment,
either as a salaried employee or self-employed person.
1.2 People whose professional capacity for productive work
is limited and who are so severely disabled that it is impossible
for them to work temporarily or permanently in an ordinary
working environment should find a place in sheltered employment.
1.3 Some people with disabilities may need a modified programme
combining elements of sheltered employment in a more mainstream
working environment. Such supported or transitional employment
should be available according to the individual's needs and
wishes.
1.4 Some people with disabilities will never be able to work.
Every effort should however be made to permit them to lead
a life that provides them with satisfaction. Those with the
most limited aptitudes should therefore be guided towards
occupational activity centres which allow them to carry out
activities without regard to productivity whilst at the same
time seeking to develop their functional, social and vocational
abilities.
1.5 Special attention should be paid to the role of computers
and the impact of new technology on employment prospects.
Ways should be investigated in which computers can be used
to support people with disabilities at work and to avoid the
use of new technologies causing new barriers to the employment
of people with disabilities.
1.6 Close attention should be given to both the human and
technical means that may be employed in order to make possible
full integration into working life. Such means should include
collective measures for the benefit of all people with disabilities
and special measures to solve individual problems. If integration
is to be achieved, the full participation of people with disabilities
is essential.
1.7 In order to achieve maximum efficiency through co-ordinated
action, placement services for people with disabilities should
either be a part of, or maintain the closest possible contacts
with the ordinary employment services, and their contacts
with the various social and medical services concerned should
also be as close as possible. They should be:
- provided with the administrative and financial resources
to resolve the general or individual problems encountered
in settlement of people with disabilities in employment, and
- easily accessible to those concerned.
1.8 Employers' organisations and trade unions, as well as
government departments and organisations of people with disabilities
should be informed of these arrangements and be associated
with the integration effort, at regional and local level as
well as at national level.
1.9 Employment of people with disabilities and measures to
achieve this should always have priority over the financial
assistance to people with disabilities, without prejudice
to the financial support required to compensate for the extra
cost of the disability. Care should be taken to maintain a
balance between measures aimed at vocational integration and
financial assistance to the people with disabilities, to ensure
that efforts to achieve integration are not thwarted.
2. Employment in an ordinary working environment
2.1 In order to ensure equality of opportunity in employment
for people with disabilities, measures should be taken to
avoid all discrimination in obtaining and keeping a job, and
in remuneration and career prospects.
2.2 The services responsible for the placement of people with
disabilities should assist their employment in an ordinary
working environment, as far as possible, by individual measures,
such as:
- ensuring that all people with disabilities obtain the highest
vocational qualification possible,
- finding the job best suited to the aptitudes and wishes
of the individual, impeded as little as possible by the disability
helping to overcome its effects,
- adapting the workplace to take account of safety or operational
requirements resulting from the employee's disability;
- providing special tools and special or adapted clothing
needed because of the nature of the disability;
- supplementing wages during the period of adaptation to the
job needed by reason of the employee's disability;
- working out a means of evaluating any reduction in output
and ensuring that there is compensation for theproportionate
wage reduction;
- measures to offset exceptional expenditure arising from
the employee's disability;
and collective measures such as:
- support for the creation of new jobs;
- employment incentives;
- employment quotas;
- reserved employment.
2.3 Follow up action for as long as necessary should be taken
by the placement services in collaboration with other services
concerned to ensure that people with disabilities placed in
employment are satisfactorily resettled there.
2.4 Steps should be taken to make employers and workers aware
of how they can contribute to the rehabilitation into work
and employment of people with disabilities. Without prejudice
to existing legal undertakings, such steps should be:
- to encourage, to the extent required by national conditions,
employers and employers' organisations, autonomously or within
the framework of the structures where they are represented,
to create or help in creating jobs for people with disabilities,
particularly through collective agreements or the establishment
of quotas for employees with disabilities;
- to encourage employers generally to facilitate the integration
of people with disabilities by making suitable work available
to them by adapting the work itself, the assignment of tasks
and posts, the timetable, tools and equipment, the workplace
and other facilities, and by making the place of employment
accessible;
- to give people with disabilities the opportunity to return
to suitable types of employment as soon as they are medically
fit for work even if they are not fit enough to resume their
former occupation;
- to encourage the development of occupational health services
and arrangements for medical supervision in factories, which
should, where possible, include among their functions the
rehabilitation and resettlement of people with disabilities,
and to promote co-operation between those engaged in such
services and the various agencies working to the same end;
- to draw the attention of workers and workers' organisations
to the need to play an active part in the vocational rehabilitation
and employment of people with disabilities;
- to urge employers to sub-contract suitable production to
supporting workshops or to people with disabilities working
at home or away from home and, if possible, to supply them
with the necessary material and machinery.
2.5 Within the framework of a policy for the employment of
people with disabilities in an ordinary working environment,
situations and posts for people able to work in an ordinary
working environment should be promoted, these being subject
to the provision of specific and individualised measures to
help people with disabilities and also to assist the firm
willing to employ them.
These support measures should be as flexible and varied as
possible in order to be adaptable in the best way to each
particular case (incentive, training, preparation and attendance
measures for the person with a disability and the firm).
People with disabilities seeking employment and having professional
capacities, even if these are limited, but who are unable
to obtain employment immediately by common law, should have
priority guidance to these assisted jobs, this certainly being
the best way to give access to the greatest number of workers
with disabilities to genuine insertion into a profession.
As regards working conditions and life in the firm, the situation
of people working in this type of job should be assimilated
to a maximum degree to that of the other workers in the firm
without prejudicing a more favourable salary because of the
handicap.
3. Sheltered employment
3.1 Sheltered employment should be open to people who, because
of their disability, are unable to obtain or keep a normal
job, whether supported or not; it can cover a number of diversified
situations, amongst which are sheltered workshops and work
centres. Sheltered work should have a double purpose: to make
it possible for people with disabilities to carry out a worthwhile
activity and to prepare them, as far as possible, for work
in normal employment. To this end, all ways of facilitating
the passage from supported to ordinary employment should be
devised, such as: the setting up of sheltered work sections
in work centres or work centres in sheltered workshops; the
setting up of sheltered work sections or work centres within
ordinary firms; individual or collective detachment of workers
in sheltered workshops or work centres to ordinary firms.
3.2 Workers with disabilities should be given, as far as possible,
work suited to their occupational capacities. Whenever necessary,
the sheltered employment workplace should have suitable entrance
and exit facilities, suitable working conditions and a working
environment as normal as possible. It should be situated in
a place where workers do not, because of their handicaps,
feel cut off from other workers.
3.3 Sheltered employment should be subject to the general
supervision of the competent authorities, which should cover:
- the suitability of the person with a disability to be employed
in such a system of work;
- the legal status of the workers, the type of work, the working
hours and the remuneration envisaged;
- medical, social and psychological assistance to the workers,
provided by adequate supervisory staff;
- special training and checks on workers' progress with a
view to their possible complete settlement in an ordinary
working environment.
3.4 Sheltered workshops should:
- provide people with disabilities with useful and remunerative
jobs and should also provide any necessary personal assistance;
- constitute a production unit independent of normal firms;
- form part as far as possible of the competitive economic
system while respecting the task of supporting the person
with disabilities.
- offer satisfactory remuneration in relation to the type
of work performed as far as possible, comparing well with
open industry, and bring the person with a disability into
the social security scheme;
- endeavour to be financially viable as far as is possible
considering their social purpose. This often involves a certain
amount of assistance from the authorities and others, such
as help with construction and subsidised running costs;
- ensure that supervisory staff have the requisite technical
qualifications and, if necessary, provide additional information
and training, having regard to the workshop's special role.
3.5 Workers with disabilities in sheltered workshops should
have an adequate contractual status which takes into account
the need for personal assistance, and establishes a normal
employer/employee relationship, as far as possible. This should
include the possibility of participation and adequate remuneration.
3.6 Work centres
Assistance-through-work centres, where they exist, make provision
for receiving people who, because of their disability, cannot
work in a sheltered workshop nor in an ordinary working environment,
but who are nonetheless able, thanks to medical and social
support, to carry out a remunerative professional activity
which is distinct from a purely diversionary activity.
4. Work at home and away from home
4.1 Work at home or in other locations could be an acceptable
solution for people who are unable to leave their homes or
have serious difficulty in getting to work because of:
- vocational training and rehabilitation in preparation for
self-employed activity;
- their physical or mental health, or their family situation;
- geographical or local socio-vocational factors.
4.2 Work at home or away from home may be:
- performed in a self-employed capacity;
- provided by the private and public sector;
- organised by supporting workshops;
- supplied by centres of occupational activities, assistance-through-work
centres or voluntary bodies.
4.3 Work at home or away from home for a firm or a sheltered
workshop should be useful and sufficiently well paid and bring
people with disabilities into a social security scheme.
4.4 For people with disabilities, working at home or away
from home entails medical, occupational and social protection
and assistance. If the person with a disability wishes to
become self-employed, a scheme of financial assistance at
the start should be available to him.
VIII. SOCIAL INTEGRATION AND ENVIRONMENT
1. Principles
1.1 The various measures of the whole rehabilitation process
should always aim at furthering the autonomy of people with
disabilities as individuals and ensure their economic independence
and full integration into society. Therefore individual and
collective measures should be included and developed in the
rehabilitation programme to ensure that people with disabilities
remain or become independent individuals, able to live as
normal and complete a social life as possible, which includes
the right to be different. Full rehabilitation means a variety
of basic and complementary measures, provisions, services
and facilities which can guarantee both physical and psychological
independence. The adaptation of urban structures and town
planning, access to buildings and housing, transport, communication,
sport installations, cultural activities, leisure pursuits
and holidays are factors which should all have a bearing on
the goals of rehabilitation.
Wherever possible, it is advisable and important to involve
people with disabilities and their organisations at all levels
of policy development.
1.2 Legislation should take account of the rights of people
with disabilities and contribute, as far as possible, to their
participation in civil life. When people with disabilities
are not able to exercise their citizen's rights fully, they
should be helped to participate as far as possible in civil
life, by means of appropriate assistance and measures.
1.3 The availability of information is a condition and a key
to independent living. Not only professional workers should
be able to pass on information on all spheres of life; it
should be possible for people with disabilities themselves
to obtain information. National and regional information centres
can meet these needs.
1.4 Social counselling, social services, family help and guidance,
and possibilities of participation by people with disabilities
themselves and by organisations of and for them should be
encouraged as basic conditions for attaining integration through
full participation and equality of opportunity.
1.5 Specific arrangements should be made during the continuous
rehabilitation process to give people with disabilities the
greatest possible degree of independence, so that social and
occupational integration problems may be faced at the earliest
possible stage.
1.6 These arrangements should include, besides the most appropriate
equipment for people with disabilities, the availability of
technical aids enabling them to pursue their daily personal
and occupational activities safely and to communicate, travel
and engage in sport, cultural or leisure activities.
1.7 Where the nature or severity of the handicap or the age
of the person makes occupational resettlement impracticable,
even in supported work, at home or in a special work centre,
social, cultural and leisure-time occupations should be provided.
1.8 Appropriate measures should be taken to ensure for people
with disabilities, including people with mental disabilities,
lifestyles which allow emotional and sexual relations to develop
as normally as possible. This includes information and sexual
education in schools and institutions.
2. Accessibility
The criteria set out in the publication 'Accessibility - Principles
and guidelines should be taken into account in building policies.
2.1 Measures should be taken to promote public awareness and
dissemination of knowledge with regard to accessibility. These
measures should be focused on all the following groups involved
in achieving accessibility during the building process, the
planning of buildings and the man-made environment and should
cover all types of disabilities (motor, sensory and mental):
- people with disabilities, both private individuals and those
associated in interest groups,
- people in the service industries, teaching staff, manufacturers,
etc.,
- architects, town planners and designers, those who commission
work, funding and subsidising bodies, whether attached to
local, provincial or state authorities or private institutions,
- policy makers,
- maintenance, cleaning, security staff etc.
2.2 Regulations governing the construction of dwellings, public
buildings, tourist and leisure establishments, sports facilities
and installations used by the public, should include basic
standards for access to all these buildings and their equipment
by people with disabilities, such standards being taken into
account when granting subsidies, for building permits and
planning permission.
Similarly, regulations should be drawn up regarding the adaptation
of existing dwellings and the granting of financial help.
Regarding dwellings, particular attention should be devoted
to ensure that, besides accessibility, the living space be
also adapted to an interactive use according to the need of
people with disabilities.
2.3 The symbol of access devised by Rehabilitation International
should be used for indicating the location of adapted facilities
for people with reduced mobility. Other international symbols,
covering other types of disability, should be promoted.
2.4 Basic standards for a barrier-free environment should
be authorised on a national level, while international acceptance
by means of authorization by the Committee of European Standards
and eventually by the International Standards Organisation
should be encouraged.
2.5 Authorities should consider the needs of people with disabilities
and consult their organisations when discussing urban renewal
plans. Plans and projects must be assessed in terms of accessibility
levels.
The development of an "Accessibility Chart" should
be seen as a standard procedure in town planning.
2.6 The general environment should be made as accessible as
possible, including such measures as establishing standards
of accessibility for all shops, offices, streets, services
etc. Such provisions should take into account the variety
of disabilities and their resulting needs.
2.7 Measures should also be taken to encourage research on
improving accessibility. This involves the need to evaluate
the degree of success of proposed solutions by monitoring
their use.
3. Transport
Adequate transport facilities are essential in giving people
with disabilities greater independence and choice in their
lives. These facilities should be as flexible as possible
to meet individual needs. Public transport, individualised
transport and community-based transport schemes could all
have a contribution to make towards improving the mobility
of people with disabilities.
3.1 Public transport authorities should be invited:
- to recognise that everybody has a right to public transport;
- to make possible or facilitate travel for passengers with
disabilities, in order to promote their economic and social
integration by designing or adapting the various systems of
public transport including infrastructures;
- to take into account the difficulties experienced by all
people with disabilities, and to this end, to ensure co-operation
between the administrative departments concerned and organisations
representing people with disabilities;
- to draw the attention of transport companies to all kinds
of measures which could be taken to make possible or facilitate
the use of public transport by people with disabilities and
the importance of transport staff giving them assistance.
3.2 For individualised transport, authorities should arrange
for the provision, as far as possible and according to need,
of:
- wheelchairs for indoor and outdoor use for people with severe
disabilities whose independence of movement is seriously restricted,
- cars, if necessary with adapted devices, for regular use
on public highways, by people with disabilities if their physical
and mental abilities permit them to drive, or
- light vehicles, with or without a motor, particularly suited
to the condition of the person with a disability,
- adapted transportation for people with visual impairment.
If necessary, financial assistance should be granted to people
with disabilities:
- who are unable to use the public transport system without
assistance;
- for the purposes of adapting a car to their special needs.
3.3 Door to door transport for people with severe disabilities
who are unable to use public transport should be encouraged
by the relevant authorities in each member state.
The cost of special services should be met by public welfare
authorities who should consult voluntary organisations as
well as people with disabilities and their organisations as
regards planning and running the services.
4. Housing
4.1 People with disabilities should be able to live independently
in ordinary homes, and be integrated in society.
To this end:
- all new housing accommodation should be accessible and adaptable;
- subsidies and/or tax exemption benefits should be granted
to adapt existing housing;
- architects and building constructors should receive training
on adaptations to houses and buildings for people with disabilities;
- proper access should be provided.
4.2 A wide variety of housing possibilities should be available,
ranging from normal adapted houses, if necessary with therapeutic
or social support, via semi-communal accommodation to residential
care.
4.3 Besides a wide range of housing possibilities, alternative
forms of family accommodation should be available for people
with disabilities, such as:
- temporary respite care, i.e. for sickness, holidays, weekends;
- foster families.
4.4 People with disabilities living at home, requiring support
and assistance in their daily living activities or in need
of more than temporary medical or other care should be entitled
to receive such help in their homes.
4.5 To this end care services should be organised in such
a way that people with disabilities can obtain help in the
home when needed at any time of the day or night.
4.6 Where residential care is required, measures should be
taken to:
- ensure that the rights of people with disabilities (including
full participation and self-determination) are protected and
their wishes taken into account;
- offer psychological and social counselling to the residents
and their families and
- encourage the move towards more open and smaller units where
the person with disabilities can have some degree of independence
and privacy.
4.7 People with disabilities moving from institutions with
intensive forms of care to other forms of housing should initially
receive training in independent daily living and continuing
support later.
The possiblity for people with disabilities to move into normal
housing should be maintained.
5. Technical aids
5.1 Besides the traditional or technical medical appliances
designed to compensate the impairment or disability or offset
its effects, a considerable range of technical aids is necessary
or useful for daily professional activities.
5.2 Agencies responsible for providing such aids should maintain
a complete list and make it available to the individuals and
institutions concerned.
5.3 Particular care should be taken to determine the technical
characteristics, price and resistance to use of each of the
technical aids available on the market in order to establish
what guarantees are being offered to users with disabilities.
5.4 To ensure optimal resettlement, statutory authorities
should cover, wherever possible, the cost of such appliances
or equipment as well as their maintenance and renewal.
6. Communication
6.1 With a view to encouraging people with disabilities to
participate as far as possible in society, it is desirable
to make all means of communication, television, radio, press
and telephone, available to them.
6.2 Among the measures needed the following examples may be
mentioned:
- the subtitling and interpretation of sign language in television
programmes,
- induction loops in public buildings,
- distribution of papers in Braille or large-sized print,
- adaptation of telephones for people with hearing impairment,
- telecommunication services (i.e. minitel)
- interpretation of sign language in public places (courts,
etc.).
More specifically, telephones and other means of communication
should be supplied and installed at reduced cost, where individual
needs or the severity of the person's disability make it essential.
6.3 The development of technology, particularly microprocessors,
has produced new advanced aids and techniques which can improve
communications for people with disabilities. If possible,
these aids should be made available to help people with disabilities
in their daily life.
6.4 The use of newly developed alarm systems make people with
disabilities and the elderly feel secure at home. Such systems
should therefore be made available to them.
7. Sport
7.1 Sport, including competitive sport, should be recognised
as one of the vital factors in the rehabilitation of people
with disabilities, particularly with regard to their integration
into society.
7.2 Sporting activities for people with disabilities should
therefore be extended and their further development encouraged
by appropriate public relations methods, the training of staff,
the planning of sports centres and the promotion of associations
concerned with sporting activities.
7.3 In accordance with the objectives of integration, appropriate
measures should be taken for people with disabilities to take
part in sporting activities in the company of the able-bodied.
7.4 Public sports facilities including changing rooms, lockers,
showers, etc should be accessible to and usable by people
with disabilities.
7.5 All relevant public authorities and private organisations
should be aware of the sporting and recreational wants and
needs, including in education, of all people with disabilities.
7.6 In some cases, people with disabilities benefit more from
or prefer separate specialised sporting facilities, which
should be available and accessible.
7.7 Policies should be developed to give the general public
more information on sport for people with disabilities. Active
involvement of major sports organisations should be encouraged.
8. Leisure time and cultural activities
8.1 All leisure, cultural and holiday activities should be
made accessible to people with disabilities. In addition,
special activities for them should be provided, when requested
by people with disabilities, and where the conditions permit
them. Active participation of people with disabilities in
all cultural, social and political activities should be promoted,
including the opportunity for involvement at a professional
level.
8.2 Structural, technical, physical and attitudinal obstacles
which limit the enjoyment of the above activities should be
removed. In particular, access to cinemas, theatres, museums,
art galleries, tourist venues and holiday centres should be
improved. Access to means of transport and independent mobility
should be encouraged. Awareness training for staff working
in leisure and cultural centres should be made widely available.
Cultural and leisure venues should be planned and equipped
so that they are accessible and can be enjoyed by people with
disabilities.
8.3 General guide books on leisure, tourism and culture should
include all possible information on facilities available to
people with disabilities, including transport, hotels, restaurants
and sports facilities. They should indicate by accessibility
symbols, essential access facilities including toilets, facilities
for people with sensory and learning difficulties, availability
of assistance etc. The symbols should follow international
conventions, and the keys should be given in several languages.
Such guides should be available in accessible forms, including
braille, large print and tape.
8.4 All means to improve access and enjoyment of leisure,
culture and tourism for specific groups of people with disabilities
should be introduced. Examples may include:
- Specific guide books for special categories of people with
disabilities, describing particular facilities for people
with learning difficulties or who are visually impaired;
- Encouragement of the use of audio cassettes providing specific
guides for visually impaired people;
- Provision of sign interpretation for cultural and leisure
activities;
- Provision of audio-description in theatres and cinema
for visually impaired people;
- Flexible arrangements for seating to enable visually
and hearing impaired people to have access to suitable places
in cultural performances;
- Provision of models, maps and relief plans for people with
sensory and learning impairment.
- Public promotion of an "Accessibility Chart".
8.5 Government institutions, leisure and cultural organisations
should develop comprehensive access policies and action programmes
designed to bring significant and lasting improvements in
access for all people with disabilities.
IX. SOCIAL, ECONOMIC AND LEGAL PROTECTION
1. Scope and principles
1.1 In order to avoid or at least to alleviate difficult situations,
sidelining and discrimination, to guarantee equal opportunity
for people with disabilities, and to develop personal autonomy,
economic independence and social integration, they should
have the right to economic and social security and to a decent
living standard by:
- a minimum livelihood,
- specific allowances and
- a system of social protection.
1.2 If there is a global system of economic and social protection
for the population as a whole, people with disabilities should
be able to benefit fully from it, and their specific needs
must be taken into consideration. To the extent that this
does not exist, a specific system must be established for
continuous provision for people with disabilities.
1.3 Socio-economic protection must be ensured by financial
benefits and social services. This protection must be based
on a precise assessment of the needs and the situation of
people with disabilities which must be periodically reviewed
in order to take into account any changes in personal circumstances
which had been the reason for such protection.
1.4 Economic protection measures must be considered as one
of the elements of the integration process for people with
disabilities.
2. Economic and social security
2.1 In addition to:
- social benefits granted to people with disabilities as well
as to other people, e.g. unemployment benefits,
the economic and social security system should grant:
- special benefits in cash or in kind for people with disabilities
covering rehabilitation and other special needs, e.g. medical
treatment, vocational training, technical aids, access to
and adaptation of housing, transport and communication facilities;
- special financial support for families who have a child
with disabilities;
- adequate assistance, e.g. installation allowances or investment
loans for people with disabilities wishing to become self-employed;
- a minimum livelihood covering their and their families'
basic needs and requirements for people with a degree of disablement
which prevents them from working;
- benefits for people who need the continuous assistance of
another person because of their disablement;
- benefits to people who are unable to seek employment because
of care provided to a person with a disability;
- where financial assistance is given up in order to take
up employment, this financial assistance should be protected
and guaranteed if employment proves unfeasible;
- benefits to people with disabilities who,
on account of their disability, are able to work only part-time.
2.2 Fiscal measures should be provided to cover the particular
expenses incurred by people with disabilities in everyday
life, especially for the acquisition of technical aids and
vehicles if not covered by the social security system.
3. Legal protection
The exercise of basic legal rights of people with disabilities
should be protected, including being free from discrimination.
In cases where people with disabilities are partially or totally
unable to administer their own property, they should be provided
with legal protection such as in the form of a guardian or
legal assistant. This protection should not be more restrictive
than necessary and should be based as fully as possible on
the individual's wishes.
4. Social services
4.1 The varying needs of people with disabilities in respect
of social counselling and social services should be covered
primarily in the general framework of social services but
in order to respond to the specific needs of people with disabilities:
- in some cases specific services will have to be used and
- the services should provide for as much activity and individual
autonomy as possible.
4.2 Information, guidance and assistance should be offered
to any person suffering from a disability about facilities
and services available to meet their needs.
4.3 Home care services should make it easier to keep people
with disabilities in their usual environment, leading an independent
life, and provide a whole range of activities of a domestic
and social nature, psychological support and rehabilitation
for people with disabilities and for families encountering
serious difficulty in providing for their daily needs. These
services should include:
- assistance with housework,
- meals at home,
- child care assistance,
- company at home and aid for outside activities,
- information services such as interpreters, taped newspapers
etc,
- telephone and tele-alarm aids to call emergency service,
- help with activities of daily living (A.D.L.).
4.4 Promotion and co-operation services should strengthen
the active life of people with disabilities in their communities
and make it easier for them to take part in common tasks,
and also stimulate social measures, particularly voluntary
work and associations by:
- promotion and stimulation of associations and co-operatives;
- technical and financial support of organisations dealing
with people with disabilities;
- awareness and promotion campaigns in collaboration with
relevant bodies, associations and the media;
- encouragement of voluntary work;
- promotion of participation in various aspects of social
and community life;
- leisure, artistic, cultural and sports activities.
4.5 Specialised support services should meet the specific
needs of people with disabilities, including activating care,
where it is not possible to apply the principle of normal
integration because of the extent or complexity of disablement,
by:
- ambulatory treatment or, where this is not possible,
- a residential system,
- centres for occupational activities.
4.6 Centres for occupational activities for people with disabilities
should offer opportunities for integration into the community,
social contacts, and for training of personal development
through constructive leisure and occupational activities:
- day centres for people with mental disabilities which provide
care, psychological guidance, education, and opportunities
for various activities, companionship and social integration,
- activity centres for people with physical disabilities which
should cater for those who are unable to find employment or
do not follow an educational course.
These institutions should have a differential and varied programme,
mainly consisting of leisure and creative group activities,
with emphasis on social aspects. The programme and working
method should be adapted to the individual capacities of the
participants and needs regular evaluation.
X. TRAINING OF PERSONS INVOLVED IN THE REHABILITATION
PROCESS AND IN THE SOCIAL INTEGRATION OF PEOPLE WITH DISABILITIES
1. Principles
1.1 All those whose duties require them to take action in
areas of rehabilitation and integration of people with disabilities,
either directly or indirectly, should be given adequate training.
This is essential for all professions concerned with the care
of people with disabilities, especially in the light of their
movement from institutional to community care. Such training
should aim at helping people with disabilities to live as
normal a life as possible. Education and support for parents
are also essential to help people with disabilities to live
in the community.
1.2 Training should be understood in the widest sense and
should embrace:
- general training, which normally leads to a diploma and
forms the basic qualification for the work concerned;
- additional professional training specific to the field or
discipline in question;
- specialised training in rehabilitation.
It should emphasise the following aspects:
- introduction or adaptation to the teamwork required by rehabilitation;
- introduction to the techniques of communication and teaching
methods;
- information concerning the nature of handicaps, their repercussions
and the role of rehabilitation,
- the active role in the rehabilitation process played by
the people who are or who are in danger of becoming disabled.
It should extend to:
- further training and in-service training;
- retraining to keep up with technical advances in rehabilitation
and technological advances in the various fields of social
and economic activity and the development of society's attitude
towards disabilities;
- information about technical aids contributing to the rehabilitation
and integration of people with disabilities.
1.3 To ensure that rehabilitation is seen as a personalised,
single, continuous and co-ordinated process, occupational
training courses should be guided by the same specific criteria
as rehabilitation programmes for people with disabilities.
1.4 The standard of staff should be constantly improved with
respect to better selection, induction courses and further
training courses.
1.5 Rehabilitation staff should be made thoroughly conversant
with all the social and administrative measures that exist
to assist people with disabilities and with the procedure
for setting them in motion; in particular they should be familiar
with the different vocational guidance opportunities as well
as the work opportunities available to people according to
their abilities.
1.6 There should be very close co-operation between:
- the various types of staff directly involved in rehabilitation;
- the various agencies that can assist in rehabilitation and
employment, such as national, regional and local authorities;
- public and private agencies, both sides of industry and
voluntary organisations that have a part to play in connection
with the rehabilitation and social and occupational integration
of people with disabilities.
1.7 Co-operation between staff, authorities, institutions,
and voluntary organisations should be encouraged at national,
regional and local level.
1.8 All available means of communication, both traditional
and modern, should be used to achieve co-ordination.
1.9 Steps should be taken to facilitate exchanges of rehabilitation
staff between member states in order to broaden their knowledge
of new methods and techniques.
2. Training of health care personnel
2.1 Medical students and doctors
2.1.1 All medical students should be taught about rehabilitation
problems, especially about the need for early diagnosis and
treatment and for co-ordination between rehabilitation services
and staff. To this end:
- in addition to in-depth knowledge in the medical field,
rehabilitation should be a subject in the basic medical course;
- knowledge acquired and performance in this field should
be assessed.
Teaching should include interaction with the people who are
or who are in danger of becoming disabled and cover the course
of the impairment, disability and handicap, the general concept
and process of rehabilitation, as well as methods of diagnosis,
prevention and treatment, so that a patient can either be
taken fully in charge by a doctor or be referred to a specialist.
Medical students should also be trained in various rehabilitation
problems, including psychological training for dealing with
people with disabilities and their families. A sufficient
number of teachers specialised in rehabilitation is indispensable
for this course.
2.1.2 Doctors should acquire a thorough knowledge of rehabilitation,
especially if they wish:
- to specialise in or devote themselves exclusively to rehabilitation
which requires specialised training and ability to co-ordinate,
plan and evaluate a rehabilitation programme;
- to enter a branch of social medicine (company doctors, social
insurance doctors, doctors co-operating with vocational guidance
services, child health surveillance doctors);
- to specialise in any branch of medicine involving rehabilitation
(paediatrics, rheumatology, neurology, orthopaedics, geriatrics,
cardiology, pneumology, etc).
2.1.3 To the above end the following should be developed:
- specific training courses in multi-disciplinary rehabilitation
medicine and complementary integrated training courses adapted
to each of the above-mentioned types of work;
- structures combining medical care, teaching and research,
particularly fundamental and clinical research, such as are
necessary for the basic training of the different practitioners
and for retraining in the clinical, therapeutic and technological
sectors, since on them all co-ordinated interdisciplinary
action depends; and such structures also are essential for
the training of senior medical care and teaching staff;
- the dissemination of information and knowledge in this field
backed up by the publication of basic texts and other works.
2.2 Non-medical staff involved in medical rehabilitation work
2.2.1 Each member of the non-medical staff
who, through his profession collaborates in medical rehabilitation,
should be given a sufficient introduction to the subject and
the opportunity not only to be kept informed of recent developments
in both his special branch but also in rehabilitation. This
might be achieved by including rehabilitation in
initial training courses or providing in-service training
supplemented by special courses.
2.2.2 As regards non-medical staff,
- basic training courses should cover the concept and methods
of rehabilitation and lay emphasis on the importance of interdisciplinary
co-operation, on patient staff relations and on the need for
the patient to take an active part in the treatment;
- the training of senior staff for teaching and practice should
be developed within the profession; training should be integrated
in the general medical system in order to facilitate the development
of a common language and a holistic approach to treatment;
- in-service (particularly interdisciplinary) training schemes
should be encouraged.
2.2.3 Rehabilitation should be included in the basic syllabus
of nurses' training courses, stress being laid on the need
for active participation of the patient and his family.
2.2.4 Specific further training courses should be developed
for certain categories of nurses, carers and other non-medical
staff, particularly
- those working in specialised rehabilitation institutions,
- those working outside hospitals, such as health visitors
and district nurses, work nurses, school nurses etc.
and for supervisory or teaching staff in or outside hospitals.
3. Training of teaching and educational staff
3.1 All those professionally responsible for teaching and
education should be provided with training including a study
of special educational needs. Such training should have regard
in particular to the important role of communication and the
new technologies. The importance of personality development
of children with special emotional needs should be stressed,
and specifically the traits of adaptability, creativity and
empathy should be underlined.
3.2 Those specifically responsible for teaching people with
disabilities should be provided with further training enabling
them, firstly, to acquire a detailed knowledge of handicaps
and, secondly, to master methods and techniques of assessment
and assistance.
Such training might be provided, inter alia, by professionals
already possessing sound experience in the field of specialised
education. It should also stress the vital importance of co-operation
with the family circle in this field.
4. Training of vocational and guidance staff
4.1 Basic training of trainers should be adapted, as appropriate,
to:
- the individual or group receiving training, through the
provision of information about the consequences, repercussions
or manifestations of various handicaps;
- to the characteristics of the occupation taught and its
level of qualification;
- to the training context: institution, company, specialised
or ordinary training, etc.
4.2 The possession of the requisite theoretical and technical
or vocational knowledge by trainers is guaranteed by the award
of the relevant professional diploma or by the acquisition
of adequate professional experience. These qualifications
should be supplemented during employment, by attendance at
courses of further training and by contacts with the body
or services responsible for co-ordinating rehabilitation measures,
as well as with guidance centres or services, doctors, centre
staff, other trainers, professional organisations, etc, for
the purposes of identifying problems relating to the handicaps
training and employment of people with disabilities.
4.3 The basic theoretical and practical training of scholastic
and vocational guidance staff should take account of the stimulating
and co-ordinating role played by guidance in the rehabilitation
programme, as well as the diversity of such action: assessment
of aptitudes, rehabilitation prognosis, individual, vocational
and social integration programmes, vocational and social rehabilitation
progress reports.
4.4 Guidance counsellors should have received training to
a recognised professional standard and be conversant with
impairment and rehabilitation problems; their appointments
should be subject to the completion of a period of practical
training in their specific field.
4.5 The general and technical training of the guidance team,
which includes - in addition to a guidance officer - a doctor
and social worker, where appropriate, a psychologist, a physiotherapist
and a technical instructor, should be supplemented during
employment by team meetings for the purposes of the training
and mutual information of the participants. In order to achieve
this objective, exchanges of professional information and
experience should be promoted between centres as well as with
the two sides of industry and the rehabilitation co-ordination
body.
5. Training of vocational integration staff
5.1 Staff responsible for placing people with disabilities
in employment should undergo selection before being appointed.
In addition to basic training, they should attend induction
courses either before or shortly after they commence their
duties, as well as further training courses on the nature
of handicaps and the various types of employment suitable
for people with disabilities.
5.2 Monitors, supervisors and senior instructors in supported
work should, in addition to possessing vocational qualifications,
receive training in teaching methods appropriate to the specific
function of such institutions.
5.3 Those who have management and supervisory duties connected
with the social and occupational integration of people with
disabilities should receive further or in-service training,
the prime purpose of which should be to ensure that the requirements
of administrative, financial and staff management are consistent
with the needs of people with disabilities.
6. Training of social services staff and social and educational
support staff
6.1 All the professional workers responsible for social service
and educational support, whether or not they are specialised
(welfare assistants, social workers, specialised trainers,
training instructors, home helps, medical-psychological assistants,
those who provide practical assistance with everyday life
and others) should, as far as possible, hold a qualification
for their work and be able to benefit from training appropriate
to the action they have to take to help people with disabilities.
6.2 Those who have sole responsibility for people with disabilities
should be able to receive further training covering handicaps
and practical methods
and techniques.
7. Training of staff active in the sport, leisure and holiday
sectors
7.1 Staff specialising in sport, leisure or holidays for people
with disabilities should be trained in courses held at training
centres or run by voluntary organisations and appropriate
to the various types of handicaps.
7.2 This training should enable them to understand the origin,
definition, difficulties and implications of the handicap
in the context of everyday activities and, having instilled
such understanding, should enable staff to set targets in
terms of independence and social integration in accordance
with appropriate methodology.
7.3 It must be possible for people with disabilities to have
access to all training facilities which exist in these areas.
8. Training of architects, town planners and professionals
specialising in construction, public facilities and transport
to deal with the problems of people with disabilities
8.1 For the purpose of taking early action to promote a radical
and coherent policy for accessibility, the concept of integrated
accessibility should be at the roots of the basic training
syllabus for architects, town planners and engineers.
8.2 Adequate supplementary training should be made available
for professionals in these fields. Their attendance should
be strongly encouraged.
8.3 Handbooks and documentation must be updated in order to
serve the purpose of total integration.
XI. INFORMATION
1. Information
1.1 Effective information procedures, structures and institutions
should be established on national and regional level to fulfil
the need for information on all aspects of disablement, rehabilitation
and integration into society.
1.2 Information programmes are necessary because of the complexity
of problems people with disabilities have to cope with and
the large number of service-organisations which deal with
the different aspects of their problems taking into account
the need for a change of attitude of all the social partners
using a continuous, consequent and permanent information process.
1.3 Information should be available for the following target
groups:
- people with disabilities themselves,
their carers and families,
- institutions and staff involved in any field of rehabilitation
and integration,
- policy makers,
- the general public.
1.4 The scope of information should be broad and cover :
- aims and methods of integration,
- subjects relevant to the daily lives of people with disabilities,
- social-medical aspects of impairments, disabilities and
handicaps,
- organisations in the health sectors and policy for people
with disabilities for example: rehabilitation, methods of
treatment, education, vocational training, employment opportunities,
transport facilities, accessibility, technical aids.
1.5 Information should be provided by:
- general services like social services, telephone assistance
services, social advisers and law centres,
- specialised services, e.g. in rehabilitation centres, for
people with a visual or hearing impairment,
- community or pressure groups for people with disabilities
or organisations of people with disabilities,
- specialised information centres and publishers.
1.6 Co-ordination should be promoted of the information, documentation
and publicity work done by the various public and private
agencies.
1.7 International exchange of information with respect to
publications, leaflets, films or other material should be
encouraged.
XII. STATISTICS AND RESEARCH
1. Statistics
1.1 The formulation and implementation of policy on behalf
of people with disabilities, and the evaluation of its effects,
must be based on the most accurate possible assessment of
the situations and needs of the people concerned.
For this purpose, a reliable and coherent system of statistical
information should be put at the disposal of the competent
authorities. The available information must also be communicated
to any individual or organisation requesting it.
Special attention should be given to the standardisation of
the definition of the parameters, in order to render comparable
the data from different countries.
1.2 The highest possible scientific and ethical standards
should be observed in both the collection and the processing
of information in order to guarantee the people concerned
the utmost respect for their right to privacy.
1.3 The statistical data collected and processed must be as
precise as possible and should be obtained from organisations
in contact with people with disabilities (social security
funds, advisory boards, employment services, social services,
etc.).
1.4 The data collected should cover the various aspects of
the situation of people with disabilities (demographic and
family data, nature and origin of the disability, type of
education, employment, accommodation, types of specialist
service used, nature and amount of income, etc.).
2. Research
2.1 It is essential to stimulate and promote basic and operational
research in fields relating to impairments, disabilities and
handicaps.
2.2 All aspects relating to the prevention, identification
and treatment of impairments and disabilities should thus
be the subject of scientific research.
2.3 Furthermore, a programme of economic, technological, sociological
and psychological research should be undertaken or supported
by the competent authorities in order to determine, on the
one hand, the most effective means of reducing or offsetting
the handicap suffered by people with disabilities, and on
the other hand, the conditions which must be met in order
to integrate them as fully as possible into society.
With this in mind, particular attention should be paid to
the assessment of innovatory experiments in the field of integration,
and in particular those relying on new technologies.
2.4 This research should be part of a coherent general policy
referring to all aspects of human life and society. It should
be conducted in a concerted and co-ordinated manner and contribute
to exchanges of information at national and international
level.
|